11 Things everyone with EDS can relate to

In honour of EDS Awareness Month, only those with EDS will be able to relate to this:

1. “You’re too young to be disabled” – sorry I didn’t choose to be born this way!

2. Never knowing how you got so covered in bruises.

3. “It’s as easy as riding a bike” is possibly one of the worst things you can say to me. EDS makes my balance too bad to ride a bike! – And yes I did try for many years as a child and got increasingly frustrated with myself for not being able to ride a bike when all my friends could ☹

4. “You don’t look disabled” – sorry, I didn’t realise disabled people looked a certain way.

5. Being too scared to sit in the disabled seat on a bus in the fear that everyone around you will judge you if someone who looks disabled gets on the bus.

6. Having to try to explain to people that just because when you saw them last week you weren’t using a walking stick, doesn’t mean that you only use it to scam benefits. Some days I need it, some days I don’t.

7. Not realising how weird it is to bend your arm that way until someone points it out, and then always feeling conscious not to look weird!

8. Never making plans with friends in the fear that you’ll have to cancel on the day because you feel too ill.

9. Getting annoyed with people who moan about the pain they’re in after they’ve been to the gym – try feeling like that 24/7!

10. Needing to block out a full week in your diary to recover from one day out.

11. Falling over all the time and being nicknamed “the clumsy one”

Add in the comments below anything else that all EDS sufferers can relate to

#EDS #EhlersDanlosSyndrome #EDSAwarenessMonth